Information
Organization's Own Description:
The Congressional Fragile X Caucus is working towards increasing public awareness of Fragile X disorders and letting Fragile X families across the country know that they are not alone in their struggles.
Fragile X Syndrome is the most common cause of inherited intellectual disability, resulting in a wide range of mental and physical impairment. Approximately 1 in 3,600 males and 1 in 4,000 to 6,000 females are born with the full gene mutation. Fragile X-associated disorders include three separate and distinct conditions: Fragile X Syndrome, Fragile X-associated tremor/ataxia syndrome (also known as FXTAS), and Fragile X-associated primary ovarian insufficiency (referred to as FXPOI).
Public efforts, including three National Institute of Child Health and Human Development-funded Fragile X Research Centers and the CDC’s Fragile X Clinical & Research Consortium, are two initiatives that have great impact on individuals living with Fragile X. Past Congressional support of important work underway at the NIH and CDC will have a considerable impact on the important projects under consideration at these agencies.
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